Decreased Mobility/Muscle
Wasting

  • If still mobile, the legs are growing weaker and less reliable

  • As thighs weaken, more assistance is required when rising or walking

  • More apathetic about movement within the house, sometimes choosing to spend a lot of time in a favorite chair, for example, even when self-movement or easy transfers are still possible

  • Less interested in outings, which have become more difficult

  • Eventually, it is likely that the patient will be unable to get out of bed

  • When bedridden, it becomes increasingly difficult to turn over without help

  • Generally, the legs lose strength before the arms do

  • Inactivity while on Decadron does allow the drug to cause faster muscle atrophy, with the thighs acting as the prime target

  • As things progress, the legs may wither considerably as muscle is lost

The Signs


  • Frustrated over the loss of independence

  • Angry about being "babied" when caregivers offer physical support

  • Curious and hopeful about whether physical therapy could regain motor
    function

  • Passionate and desperate about exercising in a final effort to halt the deficits

  • Apathetic toward being moved from place to place if no longer able to enjoy
    daily activities once there

  • Short-tempered toward the caregiver if the assistance is clumsy, awkward,
    or uncomfortable

  • Legitimately fearful of accidents and injury when transferred by the caregiver

  • Envious that the primary caregiver has more mobility and freedom, sometimes leading to possessiveness, or fussing when the caregiver has been out of the room for longer than a few minutes

  • Shameful over "burdening" the caregiver (especially if the primary caregiver is an aged spouse, is significantly smaller than the patient, or has back problems)

  • Sorry that he or she is unable to offer the normal help around the house, especially if spending most of the time in a public room where it is more obvious that household chores may be neglected

  • Mentions previous strength and stamina in an effort to remind him- or her- self of what they used to be capable of

  • Depressed because outings or even changes of venue within the house have become more limited, meaning that the world has suddenly grown very small

  • Aware that the physical deficits make him or her feel like an invalid

  • Afraid that as motor deficits increase, his or her quality of life will be minimal

What the patient may be feeling


  • Concerned over whether he or she has the strength to support the patient safely

  • Worried that the patient will attempt to walk without supervision and suffer a fall

  • Achy (especially if he or she already has back problems)

  • Afraid of hurting the patient when making bedding adjustments

  • Curious about equipment that might be helpful

  • Frustrated by spending so much time in one room of the house

  • Tired, if needed throughout the night to help the patient move from the bed to the toilet or to address other needs resulting from the lack of physical mobility

What the caregiver may be feeling

End-Stage Landmarks